Same for you. I know many deal with struggles. I always stayed away from other drugs but figure at this point in my life comfort is more important. Surprisingly I’m young enough to hopefully get a better control, but for all I know this could have been one of the fun conditions I picked up from the military, who knows unfortunately. I look at things as one more step and beat yesterday!
As for the medication, it’s Acthar Gel H.P. Made by Mallinckrodt, that’s the one with the hefty $40k price tag. They cover my copay but, with their pending bankruptcy filing no one knows what will come of it for their manufacturing of the medication, if they will sell it, get a bailout, or what. Nature of the beast when there isn’t a lot of drive for research.
Wishful thoughts for your appointment! As well as the journey you’re on.